Egun, 170 kide inguru ditu Begisarek. 1997an sortu zuten erretinosi pigmentarioak eragindakoen Gipuzkoako elkartea, eta hiru helburu nagusi ditu: ikerketa bultzatzea, gaixotasuna duten herritarrei laguntza eskaintzea eta gizartea sentsibilizatzea.
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